Thursday, September 27, 2007
Manish
About eight months after Anna and I left California we got some really troubling news about a dear friend, Manish Desai (left). Manish was told he had cancer in his hand. The short story is cruel: Manish sacrificed his hand in order to stave off the risk of the cancer spreading. Even worse, the hand that he lost severely restricted his professional skills as an architect. Almost two weeks ago, Manish began chemotherapy to further eliminate the risk of the cancer returning. Thanks be to God, right now there are no visible signs of cancer.
Still, the road is steep and hard for him and for his wife, Emily. Together, they are daily trying to relearn old rhythms and navigate life as parents to their beautiful son, Dillan.
The good news: Manish and Emily have an incredible amount of faith and perseverance of hope, and they have been a gift to Anna and I even as they've struggled through this battle.
And, yet, they are in need of more than prayers and encouragement. Manish is seeking the assistance of a prosthetic hand that would allow him to return more aptly to his work - not to mention his duties as father and husband. However, Manish's (and Emily's) hope of obtaining this prosthetic is severely limited by cost and the fact that his insurance company currently doesn't recognize the prosthetic that would best assist him.
This is why I am writing and posting this. Below is a letter written by a mutual friend of Manish, Marshall Allen (center of picture above). Marshall is a journalist for the Las Vegas Sun, and has also written a story about Manish for that paper, which you can read here. Also, here is a good website elaborating Manish's and Emily's journey: www.whatsleftisright.com
I hope you will consider Manish in your prayers. And if you can provide more, God bless whatever you give.
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Dear Loved Ones,
It's a great honor for me to make a sincere appeal to you on behalf of my
dear friends, Manish, Emily and Dillan Desai. This family, as you may know,
have been stretched to capacity in the past six months during Manish's
battle with cancer. In this time of crisis they've been buoyed most by their
faith in Almighty God and the community of loved ones who has surrounded
them with companionship, support and encouragement. So, I greet you all as
Manish and Emily's "loved ones" because we may not know one another, but
this wonderful couple is the hub that joins us all.
It's been six months since Manish was diagnosed with cancer. I remember when Manish called me and told me about the cancer. He's a follower of Jesus, and given the depth of
his faith he said he's not afraid to die. But he said he does not want to
die. Manish is 31 and an architect - a gifted one with a passion for design.
He and Emily have been married about six years and have a beautiful
21-month-old boy, Dillan. The Desais have a lot of life to look forward to.
How we cried when we heard that news. And we prayed.
God was at work even before Manish found out he had cancer. First, he was
protected. The doctors are surprised that Manish is even alive because the
form of cancer he has is known to spread rapidly. Then, he and Emily were
sustained. Their attitudes have been a remarkable testimony through this
ordeal. And finally, they were looking to the future. The cancer doctors
were always clear that amputating Manish's left hand -- his dominant hand --
would be the best approach to dealing with this grave disease. Manish
mourned the loss, but Emily says the day he was given the news he also
started practicing writing and sketching with his right hand.
The cancer is gone (though it could come back, so keep praying) and we're
continuing with this push forward. I'm happy to say that the latest step
involves all of us. We have a God-given opportunity to give a remarkable
gift to Manish, Emily and Dillan -- a new hand. Manish is in the process of
getting an i-Limb, by a company called Touch Bionics.
This hand provides precision and fine motor skills that are unmatched among
other prosthetic devices, which are more hook- or claw-like. The i-Limb
boasts four fingers and a moveable thumb, each powered by its own motor and
directed by a central processing unit in the palm. It's an amazing piece of
technology and Manish's best bet to keep his career cruising in the fast
lane. (He has more work than ever, incidentally.)
There's one drawback, but this is our chance to shine. The i-Limb was just
introduced in the United States about two months ago and there are only 30
in the country. Insurance companies are not paying for this yet, and the
costs could be as high as $50,000 to get Manish set up for the first few
years (the hand itself is about $17,000, the cosmetic cover about $4,000,
the extended warranties are $4,000, the forearm fitting, labor and physical
therapy could be another $20,000, and there will be thousands in maintenance
annually and a new hand needed every five years or so).
Many of you have asked, as I did, how we can help pay for this hand. We've
set up a website that will provide that information, as well as tell Manish
and Emily's story for other people who may be going through similar
circumstances. Check out www.whatsleftisright.com to see the site, read
their story and check out the blog. You can also see a story I wrote about
Manish's search for a new hand. I'm a journalist at the Las Vegas Sun
newspaper, and by God's providence Manish and Emily came out here to a
prosthetics convention last week to check out the i-Limb.
Be sure to click on "Donate" to give via Paypal or see where to send a
check. We're sorry that there's no way to make this tax deductible, but you
can get points on your credit card by donating online, at least.
Some people may think that $50,000 sounds like a lot of money for people
surrounding Manish and Emily to raise. That's not the way I see it. First,
I'm asking that those of you who know Manish and Emily personally please
consider a sacrificial gift for this fund. That means a different amount for
all of us, obviously. Some people could give $5,000, some $1,000, some $100.
For some that might be $20. I just ask that you be generous and joyful about
this opportunity.
Second, I'm asking those of us who know Manish and Emily personally to
liberally forward this fundraising request to everyone on our email lists.
If the people who know each of us give only $10, or even $5, and if they
forward this request to their friends, we will have $50,000 in no time. I've
already had people at my office say they want to donate, and giving online
makes that really easy. Let's get this thing viral and send it around the
world!
You can keep up to date on Manish's progress via the website and his blog.
I'll be sure to write regular updates so you're informed, and am happy to
answer any questions you might have about the Desais or this fund-raising
effort. We are so excited to see God move in this next chapter of Manish and
Emily's life!
Grace and peace,
Marshall Allen
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